PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact
PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact

Event Calendar

CSL Behring Junior National Championship

Friday, October 6, 2023Sunday, October 8, 2023
Henderson, Nevada

Developed by CSL Behring, the Gettin' in the Game Junior National Championship (JNC) was the first and currently the only national sports competition designed specifically for the bleeding disorders community.

Participants will have the opportunity to learn about the importance of physical fitness in managing a bleeding disorder, build relationships with fellow members of the bleeding disorders, and participate in baseball, basketball, golf, or swimming activities to learn the fundamentals and enhance their skills in that sport.

****Important Notes:
• This program is for kids and teens aged 7-18. One parent or guardian will accompany the participant.
• CSL Behring covers all travel costs and meals during the event.
• There are only 2 spots available. Applications are due August 1st and will be chosen via a lottery.

Learn More and Apply Below

Contact Info
Chelsea Hilty
304-261-9622
Related Links
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PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact
Privacy Policy

Privacy Policy

  1. What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
  2. Personal Information You Choose to Provide We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys. If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
  3. Website Use Information Similar to other websites, our site may utilize a standard technology called "cookies" (see explanation below, "What Are Cookies?") and web server logs to collect information about how our website is used. Information gathered through cookies and server logs may include the date and time of visits, the pages viewed, time spent at our website, and the sites visited just before and just after ours. This information is collected on an aggregate basis. None of this information is associated with you as an individual.
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  9. How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
  10. How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
  11. Do We Disclose Information to Outside Parties? We may provide aggregate information about our customers, sales, website traffic patterns and related website information to our affiliates or reputable third parties, but this information will not include personally identifying data, except as otherwise provided in this privacy policy.
  12. What About Legally Compelled Disclosure of Information? We may disclose information when legally compelled to do so, in other words, when we, in good faith, believe that the law requires it or for the protection of our legal rights.
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We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

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Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.
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  • NHF Privacy Policy

    Our Commitment to Privacy
    The National Hemophilia Foundation (NHF) respects the privacy of every individual who visits our Web sites, including hemaware.org and hemophilia.org. This notice explains our online information practices, and links to it are posted conspicuously throughout the websites. By visiting the websites, you accept the practices described in this notice.

    Information Collection and Use
    NHF is the sole owner of the information collected on this site. We will not sell your information to others outside of NHF. We will not send donor mailings on behalf of other organizations.
    NHF collects data from visitors to the site via various registration forms. Completion of any of these forms is optional. Information collected via the form is entered into the NHF database. The visitor will be placed on a list to receive NHF e-mail communications (NHF Notes, medical advisories, notices of importance to the bleeding disorders community and others), as well as occasional communications by regular mail. Visitors who do not wish to receive communications from NHF have the opportunity to opt out at any time. Form completion also allows visitors to register online for specific events, make donations online or offline to NHF and join NHF or renew membership.
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    Advertisers/sponsors and Links: Advertisers/sponsors, or websites that have links on our site, may also collect personally identifiable information directly from you. The information practices of companies collecting data on our site or websites linked to hemophilia.org are not covered by this privacy policy.
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    Protecting the privacy of the very young is important to us. For that reason, we do not maintain information on our Web site from those we actually know are under 13.

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    NHF has in place physical, electronic and managerial procedures to protect the information collected online. All NHF online data collection services are served over HTTPS and utilize a 128-bit SSL encryption for enhanced security during submission of data. NHF's constituent/donor database (Blackbaud Sphere) is a PCI DSS and PA-DSS compliant product. They process payments protected by state-of-the art security measures, such as redundant firewalls, authentication services and an encrypted SQL database unreachable by any public IP address. NHF limits access of its constituent data to key personnel, on a needs only basis, to effectively carry out their duties. However, as effective as these measures are, no security system is impenetrable. We cannot guarantee the security of our database, nor can we guarantee that the information you supply will not be intercepted while being transmitted to us over the Internet.

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  • NHF Medical Disclaimer

    The information contained on the NHF web site is provided for your general information only. NHF does not give medical advice or engage in the practice of medicine. NHF under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

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© West Virginia Chapter National Hemophilia Foundation 2023

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