You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
Join us for our biggest annual fundraiser at Marilia Park in Morgantown, WV.
We would like to invite the Elkins bleeding disorder community and others interested to participate on this educational dinner sponsored by Takeda covering the topic "RECOGNIZING AND RESPONDING TO A BLEED: Bleeding episodes may be common in hemophilia. In this program, learn how a bleed impacts your body, how to recognize and respond to bleeds, and what you can do to manage your health".
Dinner will be provided by Vintage Restaurant and paid for by Takeda. If you have any dietary restrictions that may need special attention such as vegetarian or require gluten-free options please inform us ahead of time so we can properly manage those accommodations.
Please RSVP as soon as possible so we can have a proper head count for the event.
For more information please reach out to Fernando Andrzejevski at 681-212-9255 or via email firstname.lastname@example.org
The first year, Steve did the entire ride on his own. Over the years, the number of riders has grown, and with his wife’s help, our Finish Line party has also grown from 40 people the first year to over 80 people last year. We’re very proud as a chapter of how much this member driven bike ride has grown and has inspired the entire chapter. This year’s event promises to be the biggest one yet with expectancy of over 100 supporters! You can also check the “Team Spokes Men” facebook page for pictures and other information about the previous events
Spokes Men for Bleeders will be held in Harper’s Ferry on Saturday, October 12th. The finish line party will take place from 5-8pm at the Bolivar Pentecostal Church, 87 Old Taylor Lane, Harpers Ferry, WV 25425.
We will also be offering a spaghetti dinner following the finish line event inside the church. Cost is $10 / person.
Joins us for our annual meeting during this exciting new time for our chapter. Our headline presentation this year will be on Gene Therapy, we will also have presentation by each HTC, as well as industry partners. Buffet dinner will be served for those present at the annual meeting as well as breakfast for those that stay overnight and locals that wish to enjoy breakfast with our chapter family.
Travel assistance and hotel stay will be available for those that request it ahead of time. Deadline to register for the event is November 1st, 2019.
You may register each individual attending the meeting or register a family and inform number of attendees within the family. Only register for overnight stay for the appropriate number of guests within your family. (Example: Family of 4 or less, 1 room. Family of 8, 2 rooms).