You’ll always know what’s going on with our organization.
Just bookmark this page and check back often for the latest programs and events.
Camp Winica HemoVon
Camp Winaca HemoVon is a 5 day residential camp for children ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. Mission: To positively impact and enrich the lives of children diagnosed with cancer or bleeding disorders by offering a camp experience, independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self worth, self-reliance and creativity through activities and the development of personal relationships that will carry over to their daily lives and throughout their lifetime.
What We Do
We provide a one week residential summer camp program held at Camp Twin Creeks in Marlinton, WV. Camp Twin Creeks provides the camp counseling staff, programming staff and all the activities. WVU Medicine provides all the medical staff and staffs a 24 hour medical infirmary throughout the week of camp. We encourage students from the School of Medicine, Nursing, Exercise Physiology, Pharmacy, Physical Therapy, Psychology or other health care related disciplines to consider volunteering.
All volunteers must complete the Children on Campus training through WVU Human Resources as well as complete a criminal background check and a national sex offenders check.
Volunteer opportunities include: Bus chaperone, medical infirmary under supervision of the Camp Medical Director or other licensed medical staff, camp counselor, photographer.
This camp is setup and operated by WVU Medicine.
Join us for our 2020 VIRTUAL Family Camp on July 24th - 26th. This event has been moved to a virtual setting due to COVID-19 but fear not, we will make this a great experience. Crafts, fun activities, games, family bonding, connecting with other bleeding disorders families in West Virginia and surrounding States, s'mores, and showing off your very own cooking skills (food included) are on the docket.
Click the link below to register, all participants must register to receive camp-in-a-box shipment that will include all supplies needed for camp, shirts, and gift card for a one time 3-day meal delivery services from HomeChef!
It is important to know that family camp will occur over a three-day period and will include 2 hours of live zoom and 1 hour of self-paced activities, by registering you agree to participate on the activities scheduled for camp.
National Bleeding Disorders Conference
WV NHF is proud to offer scholarships for families affected by bleeding disorders to attend the National Hemophilia Foundation's Bleeding Disorders Conference. Dates for the event are August 6th to August 8th in Atlanta, Georgia.
More information to follow.
Unite for Bleeding Disorders Walk
Join us for the 2020 West Virginia Unite for Bleeding Disorders Walk.
Spokes Men For Bleeders Ride
We are pleased to announce our 2020 Annual Education Meeting. This year we will be back at Stonewall Resort located in Roanoke, WV.
Presentations on Gene Therapy, mental health, VWD, kids activities, insurance barriers, and more will headline this year's education. Presentations by each HTC, as well as industry partners.
Buffet dinner and breakfast will be served for those attending.
Hotel stay will be available for those that request it ahead of time. Deadline to register for the event is November 1st, 2020.
You may register each individual attending the meeting or register a family and inform number of attendees within the family.
Due to the large number of attendees and budget we can only accommodate one room (4 guests) per affected family, if you have multiple affected family members please contact Fernando for more information and modified accommodations.
Stay tuned for event agenda.