Spokes Men For Bleeders Century Ride

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Steve Nick rides again from Harpers ferry, WV, to Washington DC, and back ALL IN ONE DAY!  He’s got company this year as he rides to raise awareness and funds for bleeding disorders!  Steve’s two sons with hemophilia will be hitting the trail with him for part of the ride. Join us for the Finish Line Party in Harpers ferry to celebrate the 2nd Annual Spokes Men For Bleeders Ride to DC!

FINISH LINE PARTY
Saturday, October 1
4-7 PM
Quality Inn
Harpers Ferry, WV

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Be a part of this amazing ride! Steve’s doing the hard part. It’s up to you to DONATE! 100% of funds raised supports West Virginians affected by bleeding disorders.

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Family Camp 2016

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We head back to Jackson’s Mill for a Wild and Wonderful Weekend!  Bring the WHOLE family (aunts, uncles, grandparents, cousins, etc.) for a fun weekend with the WVNHF Family.  Families will stay in partitioned cabins with full bathrooms and plenty of space.  Meals and activities will take place around the campgrounds and golf cart transportation is available for those with limited mobility.  Packing list will be sent after registration.

Check-in:  Friday, August 26 from 3-5 PM

*Please indicate late arrivals when registering.

Check-out:  Sunday at 9 AM

ACE Adventure special activity is from noon-4 PM.

Travel assistance is available with advance request to Amber at 681-212-9255.  Registrationdeadline is August 20.


WHITE WATER RAFTING

On Sunday, we head to ACE Adventure Resort to ride some waves! Rafting is for campers 12 and older and there is a special boat for ages 9-12.  Lake activities are available to all.  Family Camp attendance is required for this special activity.

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Education programs on topics like Bullying and Bleeding Disorders

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Guided stargazing with WVU Astrophysics faculty & campfire s’mores!

Dad and three sons on a clear night looking thru a telescope Check out this light box with other Astronaut/Space Images by Nashville Photographer, Dieter Spears, Owner of Inhaus Creative. [url=http://www.istockphoto.com/search/lightbox/2459726#898cb29][img]http://dieterspears.com/istock/links/button_space.jpg[/img][/url]

Also featuring entertainment by Rob Lightner and Scooter the Clown

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Free with RSVP!

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Matter of Factor News

WVNHF published its inaugural edition of the  Matter Of Factor Newsletter!  It features articles from members of the WVNHF family and so much more!  Check it out!

 

Subscribe to Matter of Factor! 

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Upcoming Events

  1. Spokes Men For Bleeders Ride to DC

    October 1 @ 4:00 pm - 7:00 pm
  2. 2016 WV Hemophilia Walk

    October 15 @ 8:30 am - 12:00 pm
  3. Annual Meeting 2016

    November 5 @ 9:00 am - 3:00 pm

Contact WVNHF

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WHAT IS WVNHF?

Founded in 2014, the West Virginia Chapter of the National Hemophilia Foundation is committed to serving West Virginians with hemophilia and related bleeding and clotting disorders. We provide support and education with services and programs to improve the lives of affected families in the Mountain State. By offering events and activity programs, WVNHF provides families with the opportunity to connect and build a sense of community as they support each other through life’s obstacles. LEARN MORE!