PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

About Spokes Men:

Created in 2015 by Steve & Lisa Nick, Spokes Men for Bleeders raises awareness for bleeding disorders & funds to help the WV National Hemophilia Foundation. The day begins with Steve and his teammates doing a 100-mile bike ride along the WO&D Trail ending in Harpers Ferry, WV. As the team arrives at the finish line, they are welcomed by a cheering crowd to the finish line party planned and executed by Lisa.  

During the party, community members have an educational dinner where they learn more about hemophilia, followed by a raffle and silent auction that raises money to support WVNHF’s programs and services. 

The 2023 Spokes Men for Bleeders raised over $15,500 for the WV bleeding disorders community. Visit the Facebook page.

 

Steve & Lisa’s Story: 

Steve & I have two sons that were born with Severe Hemophilia A- Factor VIII Blood Clotting Deficiency (and recently a granddaughter who was diagnosed with Hemophilia A) & we wanted to find a way to help give back to an organization that has been such a wonderful support system for us! My family felt like we were alone in our medical ordeals, but WVNHF came along & invited us to our 1st educational event where we met a whole group, or should I say, Family!  

They have taught us so much & have been there for us along the way! We just wanted to find a way to spread the word for this great organization so that no other families have to feel like they are going through this alone! 

 

Check back later for more details about the 2024 event and register on our event calendar to attend the Finish Line Party!

Contact us to sponsor, donate, or get more info.
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Thank You to our 2023 Sponsors!

PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

© West Virginia Chapter National Hemophilia Foundation 2024

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