Since its formation in 1991 in response to the HIV/AIDS crisis, HANDI continues to serve the bleeding disorders community by answering specific questions, fulfilling information requests, providing quality educational publications, and making referrals to additional sources of assistance. HANDI processes thousands of requests annually from a variety of patrons – which include patients, family members, NHF chapter staff, hemophilia treatment center providers, other health care professionals, teachers, students, international organizations, and the general public.
The subject areas of these requests reflect a wide range of needs – such as, hemophilia, von Willebrand disease, other rare inherited blood disorders, healthcare coverage, treatment, gene therapy, women’s issues, inhibitor concerns and school issues.
HANDI FAQs: These frequently asked questions are inspired by actual questions posed by HANDI patrons, they reflect a wide range of practical topics.
Contact the HANDI Team:
9-5 PM ET
Victory for Women
Victory for Women celebrates the voices of women in the bleeding disorders community. It’s a place to share creative expression of all kinds: photography, blog posts, stories, poems…whatever you feel captures you. A place where women in the community can express themselves, ask their questions, share their challenges, and above all, celebrate the victory of standing up and being heard.
Victory for Women has a section where real women in the community can ask questions and have them answered by medical professionals. Ask your question and view others HERE.