We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!
Our friends at Bayer and Optum will be providing an educational breakfast as we learn about pharmacokinetics (PK) profiles and how they affect treatment plans. After breakfast we'll head on over to the WVU Coliseum for the WVU vs Texas Tech game.
Please arrive at the Marriott by 9:00 AM. The game starts at noon. Food vouchers will be provided for lunch.
***Tickets are limited, so please register as soon as possible***
Washington Days 2023
NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to the bleeding disorders community. Register at NHF's website with the link below.
WVNHF has decided to hold our first ever Women's Retreat. The Women's Retreat is for ladies who are affected with a blood disorder, have affected family members, or are the caretaker of an affected person. It's a place to learn, relax, and get to know other women throughout the state that share similar stories to your own. We believe this is the next step to help empower women with bleeding disorders and show their voice does matter and is being heard!
The education portion will be held at the Grand Pointe Conference and Reception Center, and we will be staying at the Parkersburg Hampton Inn. We have built in time just to hang out and get to know the other women in the community.
*This retreat is intended for women and older girls. There is no programing available for children during this event.
*There may be funds available to support transportation costs. Just ask!
The Annual Education Retreat brings together families from all over West Virginia for a weekend of education, bonding, and networking. It includes excellent education sessions, and opportunities for community members to connect. The Annual Education Retreat will be held at Stonewall resort again this year! Come join us as we continue to grow the bleeding community and show you are not alone in all of this!
*This year's Ed Retreat will include more programs for children, GutMonkey for adults and teens, and time set aside specifically for the community to connect with each other.
*Funds for travel assistance may be available. Just ask!
Camp Winaca HemoVon
This is a 5-day residential camp for children and teens ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. It offers a camp experience for youth to be independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self-worth, self-reliance and creativity.
Summer Fun Days
This year we will be trying something new! instead of having Family camp we have decided to try Summer Fun Days! By doing it this way we can make sure everyone in the state gets the opportunity to attend with less distance to travel! Family fun days will give the opportunity for community members to connect, explore new exciting things, and most importantly have fun!! Stay tuned as we finalize dates for July!!
NHF's Bleeding Disorders Conference
NHF is thrilled to announce the 75th Annual Bleeding Disorders Conference (BDC)! Join us for three full days of educational sessions, networking opportunities, and access to our exhibit hall. Your registration includes entrance to our Opening Session, Awards Luncheon, and our exciting Final Night Event. We also have an Educational Kids Program available for children 12 years old and younger.
****THERE ARE TRAVEL GRANTS AVAILABLE!!! There are scholarships for families, women, and ultra-rares. Scholarship Applications close on February 26th, so if you plan to apply do it soon.*****
Spokes Men for Bleeders
Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNHF. In turn, Steve & Lisa partner with WVNHF and sponsors to throw a finish line party for the riders and community members.
Unite For Bleeding Disorders Walk
The Unite for Bleeding Disorders Walk this year will be a bit spooky. We plan to make this event extra fun with costume contests, games, activities, and trick-or-treat along the walk route. This is our biggest fundraiser of the year! It will be great! Funds raised support families affected with bleeding disorders living in West Virginia.
Virtual Holiday Party
Let's wrap up the year by coming together and spreading some holiday cheer! Come join us for an evening of fun crafts and snacks, while we compete to win prizes during our virtual scavenger hunt. It’s a great way to wrap up the year while bonding and is the last chance to see our WVNHF chapter family before the holidays!