We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!
Camp Winaca HemoVon
This is a 5-day residential camp for children and teens ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. It offers a camp experience for youth to be independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self-worth, self-reliance and creativity.
Registration is now open!
Click the registration link below.
In the upper right corner click NEXT STEPS, then ENROLL NOW
Login as NEW FAMILY
Create an account.
Click on Two Weeks Sessions and find Camp Winaca HemoVon one-week session at the bottom of list.
Complete the registration.
You will receive an email confirmation and then you will go back in and complete the forms and document section.
Black Bears Dinner and Game
Come join us for a Black Bears Game sponsored be BAYER and SOLEO HEALTH. We will meet up at the Marriot in Morgantown at 5pm for some dinner and Education from Bayer and Soleo Health. From there, we will drive over to the Black Bears game that is at 7pm. Be sure to register NOW because tickets are limited.
Summer Fun Days
This year we will be trying something new! instead of having Family camp we have decided to try Summer Fun Days! By doing it this way we can make sure everyone in the state gets the opportunity to attend with less distance to travel! Family fun days will give the opportunity for community members to connect, explore new exciting things, and most importantly have fun!! Stay tuned as we finalize dates for July!!
NHF's Bleeding Disorders Conference
NHF is thrilled to announce the 75th Annual Bleeding Disorders Conference (BDC)! Join us for three full days of educational sessions, networking opportunities, and access to our exhibit hall. Your registration includes entrance to our Opening Session, Awards Luncheon, and our exciting Final Night Event. We also have an Educational Kids Program available for children 12 years old and younger.
****THERE ARE TRAVEL GRANTS AVAILABLE FROM THE CHAPTER, BUT YOU MUST APPLY****
Registration and Grant Application linked below.
Spokes Men for Bleeders
Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNHF. In turn, Steve & Lisa partner with WVNHF and sponsors to throw a finish line party for the riders and community members.
Unite For Bleeding Disorders Walk
The Unite for Bleeding Disorders Walk this year will be a bit spooky. We plan to make this event extra fun with costume contests, games, activities, and trick-or-treat along the walk route. This is our biggest fundraiser of the year! It will be great! Funds raised support families affected with bleeding disorders living in West Virginia.
Virtual Holiday Party
Let's wrap up the year by coming together and spreading some holiday cheer! Come join us for an evening of fun crafts and snacks, while we compete to win prizes during our virtual scavenger hunt. It’s a great way to wrap up the year while bonding and is the last chance to see our WVNHF chapter family before the holidays!