PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

Event Calendar

We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!

 


Von Willebrand Disease: A to Z

Tuesday, October 4, 2022
6:00 pm7:00 pm
Bartini Prime: 350 Suncrest Towne Center Drive, Morgantown, West Virginia 26505

Von Willebrand Disease is the most common bleeding disorder is the US and is often undiagnosed until adulthood and teenage years. So let's all come together for some fun and yummy food while we get to know inheritance patterns and types of VWD. We will also talk about its various symptoms , including those that are specific to women.

Using Fitness to Fight Back

Wednesday, October 12, 2022
6:00 pm7:00 pm
Bridge Road Bistro: 915 Bridge Rd, Charleston, WV 25314

Come join us as we discover how physical fitness can help create a powerful defense against injury for people with hemophilia. Learn how to safely utilize fitness components like flexibility, core stability, strength training, and body movements to help prepare your body for a healthy, active lifestyle." Don't let having a Bleeding Disorder keeping you from being active!

Learn about Hemlibra

Time TBA
Bridgeport (time and restaurant TBD)

Come out and learn more about Hemlibra from our friends at Genentech, while we also enjoy a delicious meal together! It will be held in Bridgeport! Restaurant and time TBD

Bowling Night

Thursday, November 3, 2022
6:00 pm7:30 pm

Join Octapharma and HPC Specialty Infusion for this educational dinner: Bring your family, friends, or just yourself for a night of yummy food and bowling! We always look forward to meeting and getting to know people throughout the bleeding disorders community! So don't be shy and come have some fun with us!

Virtual Holiday Party

Thursday, December 8, 2022
6:00 pm7:30 pm

This year we are having a gingerbread house decorating competition! Register for the holiday party to get a box of holiday goodies including your gingerbread house kit and then share what you’ve done at the party to win prizes. This will be the last chance of the year for the community to see each other, so make sure you register early. This year’s party is brought to us by Octapharma, Bayer, Sanofi, and Takeda.

PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

© West Virginia Chapter National Hemophilia Foundation 2022

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