Chapter Advisory Board
Our board represents a cross-section of our community and is an advocate for the bleeding disorders community. The members work hard to ensure long-term sustainability of the organization so that the funds raised directly affect results.
If interested in joining our Advisory Board please contact us.
Lisa became a School Bus Operator for Berkeley County, WV in 2012 after being a stay at home mom for ten years! Lisa has three children, two of which have a severe bleeding disorder. Her husband, Steve and herself created a fundraising team called "Spokes Men For Bleeders" in 2015 to help raise awareness and funds for the WV Chapter of the National Hemophilia Foundation. Her husband and a group of cyclists ride one hundred miles in one day for the cause, while she plans and executes a Finish Line Party for anyone in the community interested to attend. The event is no small task and takes months of planning for the event to be a success each year. As of 2019, their fundraising team has raised over $40,000 for the WV Chapter of the National Hemophilia Foundation! Lisa and Steve own Pro Landscapes LLC in Inwood, WV, Lisa handles all the ofﬁce work; Social Media, Advertising, Billing, Filing, Phone Calls, etc. Lisa has also just become a Health Coach for a Weight Loss Program called Optavia! during her journey of getting healthy.
Kristen was born in Morgantown, WV and is married to her high school sweetheart since 2017. She has worked in management for a couple years as well as Birth to Three. Kristen has three children. Sophia was born in 2013 with severe Congenital Heart Disease and underwent multiple heart surgeries at Pittsburgh Children's Hospital. Today she is thriving and monitored on the regular basis. In 2016 my husband and I welcomed our second daughter Gabriella. On March 14, 2020 Kristen welcomed their son Mason to the world, at one day old he was diagnosed with severe Hemophilia A which was not a shock since they knew this could be a possibility since Kristen is a carrier of the hemophilia gene. Kristen is currently a stay at home mom, helps with dance and loves to volunteer with anything her children do and throughout her community. She is a local Girls Scouts Troop Leader and is passionate to work with children in any way she can. Kristen got involved with WVNHF when her son went through some trauma that resulted in a head bleed at 2 days old which then led to her getting in contact with the West Virginia National Hemophilia Foundation.
Kelly Coen grew up in the northern panhandle of West Virginia. After graduating from John Marshall High School she attended West Virginia University where she graduated with Bachelor's of Science degrees in Electrical Engineering and Computer Engineering. She currently works as a Senior Software Test Engineer with Leidos. A big believer in giving back to the community, Kelly participates in school organizations and helping with dance recitals. In her spare time, Kelly enjoys spending time outdoors with her family hiking and running. She also enjoys reading and scrapbooking. Kelly and her husband, Mike, have four children (Alyssa - 21, Ryan - 19, Abbie - 18 and Paige - 16). Paige was diagnosed at age 7 with Von Willebrand Type 1. Kelly currently resides in the Cheat Lake area of Morgantown, WV.
Diane is a retired social worker having spent most of her career as an Adoption Specialist for the state of West Virginia. She also has a degree in Special Education and spent several years working in that field.
Diane has been married to Richard Snell for many years, they have three adult children and eight grandchildren, all living within three miles of her home.
Growing up with a brother who had hemophilia allowed Diane to have great knowledge about how to raise her son with hemophilia and now to assist in the care of two grandsons who have hemophilia. She is no stranger to bleeding disorders.
Diane enjoys traveling and spending time with my family.
Bottom line, our staff is committed to make sure your voice is heard. If it concerns our cause, rest assured our staff is on it.
Chelsea Hilty: Program Manager
Hi, I’m Chelsea! I grew up in central Pennsylvania and got a BA in Environmental Studies from the University of Pittsburgh. I moved to West Virginia with my husband Josh, who is pursuing a PharmD at WVU. Prior to our move, I worked at several nonprofits around Pittsburgh, mostly focusing on community education, event planning, and advocacy.
I’m a lover of crafts and am always working on a project. I really miss going to concerts and can’t wait for that to be a thing again. I like to read, play video games, and of course spend time outdoors. I am excited to get out and explore West Virginia.
I want to help in any way that I can, so if you have questions, ideas, or anything else, feel free to reach out.