State Advocacy Days
State advocacy days are one of the major highlights of local bleeding disorders chapters advocacy programs. During advocacy days, local chapters, volunteers, and other organizations host a day at the state capitol. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, express gratitude, and advocate for legislative changes.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn lack of access to proper treatment can be detrimental to the health of someone with a bleeding disorder.