We’re the leading resource for West Virginians affected by bleeding disorders. You can count on WVNHF to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.
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Our programs are designed to provide relevant information to support people with bleeding disorders and their families with their ability to make informed choices.
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Fundraisers and events help us raise awareness and generate crucial resources in support of the bleeding disorders community. Join us at our next event and see how you can get involved.
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Our grassroots network is an integral part of our larger community. Team up with us and see what a huge difference a little bit of your time can make.
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Christi Humphrey, LCSW of Hemophilia of Georgia and Jhon Velasco, MA of NHF discuss the principles of anger and how it works in/through the body.
NHF has learned of the recent death of a patient who had been participating in a gene therapy clinical trial for a rare muscle disorder known as X-Linked Myotubular Myopathy.
Pending regulatory clearance, CSL Behring would acquire exclusive global license rights from uniQure to commercialize etranacogene dezaparvovec, otherwise known as AMT-061.
The factor product donation made by the two companies is in support of the World Federation of Hemophilia's Humanitarian Aid Program.
Healthcare providers who complete the activity will learn about the important role of log-keeping for the home treatment of hemophilia patients and much more.
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