Our Focus
The West Virginia Chapter of the National Bleeding Disorders Foundation, WVNBDF, provides education, support, awareness, and advocacy for the bleeding disorder community.
We are the leading resource for West Virginians affected by bleeding disorders. You can count on us to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.
Our Mission ... Into Action
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We provide mission-focused experiences through education, support, community connections, and fun for those affected by bleeding disorders.
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We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!
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AdvocacyWe fight to protect access to quality healthcare and treatments we need to live healthy lives, but we can't do it without your voice. Discover how you and your family can make a big difference by joining our advocacy efforts.
News Articles
At the Bleeding Disorders Conference, a pioneering session led by Dawn Rotellini of the National Bleeding Disorders Foundation put women's health in the spotlight. The panel introduced a game-changing concept: WGPPM (Women, Girls, and People with Potential to Menstruate), signaling a shift towards more inclusive care.
At the recent Bleeding Disorders Conference, an interactive pre-conference session on von Willebrand Disease (VWD) offered attendees a tantalizing look into the future of treatment and care. The session, sponsored by CSL Behring and led by Lena Volland, brought together experts, patients, and innovators to discuss groundbreaking initiatives and technologies.
Parents of children with complex medical needs gathered to share their experiences and strategies for managing stress. The session focused on three primary challenges: lack of control, suddenness, and ambiguity.
"It's like trying to catch lightning in a bottle," one mother said, describing her attempts to maintain control in unpredictable situations. From unexpected ER visits to navigating school accommodations, these parents face daily challenges that test their resilience.
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